Nurse Kelley Sez: Should I share this here?

by: Nurse Kelley

Sun Jan 13, 2013 at 17:20:57 PM EST



Many of you know that I moderate a blog for the disabled and their families/loved ones on another site. I can't cross-post most of them here because most are written by guest writers, but if there is much interest I can provide a link each Sunday with a brief description of the topic. Today's topic, for example, is post-polio syndrome.

Weigh in, Moosketeers! What say you?

Nurse Kelley :: Nurse Kelley Sez: Should I share this here?
Poll
Share it here or not?
Yes, give us the links!
No thanks, not interested.

Results

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Where's my dang poll? (2.00 / 33)
I had a simple yes/no poll attached to this post, but it seems I have a lot to learn about drafting in purple. :)

"Do your little bit of good where you are; it is those little bits of good put together that overwhelm the world." ~ Desmond Tutu

Of course you should post here too. Kosability is a great diary series. (2.00 / 28)
I just finished reading today's post on post-polio syndrome and what she went through to reach a diagnosis was frightening.

"I base most of my fashion sense on whether or not it itches"  -- Gilda Radner

[ Parent ]
Fixed my own problem [whew] (2.00 / 25)
I hate it when Jan has to sort me out and give me instructions! Y'all can vote in the poll now.

"Do your little bit of good where you are; it is those little bits of good put together that overwhelm the world." ~ Desmond Tutu

[ Parent ]
Ha!! (1.96 / 23)
And JanF hates it when you figure it out on your own and she can't step in and show how indispensable her geekitude is!!


Words have meaning. Our words will reflect what is in our souls.


[ Parent ]
Of course you're indispensable! (2.00 / 23)
[leaves the site in fear]

"Do your little bit of good where you are; it is those little bits of good put together that overwhelm the world." ~ Desmond Tutu

[ Parent ]
[you can run but you cannot hide] (2.00 / 21)


Words have meaning. Our words will reflect what is in our souls.


[ Parent ]
I think a Sunday KosAblitily link w/ Cliff's Notes... (2.00 / 23)
would be a perfectly fine addition to the Moose, Nurse Kelley.

A welcome one, even.

/grin

Photobucket


Ablitily? Oy. KosABILITY. ; ) n/t (2.00 / 24)


Photobucket

[ Parent ]
Easy for you to say. (2.00 / 10)
;)

Shake it like a Polaroid picture.

[ Parent ]
Thanks, Kysen (2.00 / 22)
It's one of the few remaining groups that is heavily moderated (plf515 and LeftOverFlowerChild, new members here, are on our board) so things rarely get off topic.

"Do your little bit of good where you are; it is those little bits of good put together that overwhelm the world." ~ Desmond Tutu

[ Parent ]
Hi Nurse Kelley! (2.00 / 25)
 If the moderators here are cool with it, I'd say go for it!

Of course you should (2.00 / 22)
It is an important aspect of the progressive conversation

O/t, but ... (2.00 / 20)
Any news on racheltracks?

Oh, and of course you should share it here! I look forward to reading it.


Not since yesterday, BUT! (2.00 / 21)
At that time her daughter reported she is off life support and breathing on her own.

"Do your little bit of good where you are; it is those little bits of good put together that overwhelm the world." ~ Desmond Tutu

[ Parent ]
That is very good news. eom (2.00 / 22)


[ Parent ]
Good news. (2.00 / 16)
Thank you, Nurse Kelley. Hearing that she's breathing on her own brings me hope.

[ Parent ]
I just got a message from Rachel's daughter (2.00 / 14)
The daughter is overwhelmed with gratitude for the outpouring of love for her mother. I can share a bit of it with you:

There are no words to express the gratitude in my heart for the love and support this community has shown my mom and my family. I believe with all of my being that she is alive today because of all the love, prayers and life energy sent her way. There have been people praying for her around the world. Thank you all for the love and prayers that gave me a second chance to become a better daughter. That gave my children another chance to be with a grandmother that worships the ground they walk on. Most of all, thank you for the love that has given her a second chance to feel the love that surrounds her and just how many people do care about her. Thank you for everything and thank you for caring so much about my mama.


"Do your little bit of good where you are; it is those little bits of good put together that overwhelm the world." ~ Desmond Tutu

[ Parent ]
Awesome! (2.00 / 10)
:~)

John Askren - "Never get into a pissing match with a skunk."

[ Parent ]
I vote please do share! n/t (2.00 / 17)


Peace, Hope, Faith, Love

Think the information (2.00 / 16)
can be very helpful and important to many people and many mooses.

Yes Kelley, it provides a terrific service if even one (2.00 / 13)
person is helped by it.  Thanks.

"Pin your money to your girdle and don't talk to strangers."  My Grandmom's advice when I went away to school.  I don't wear a girdle and have never met a stranger.  Sorry Grandmom!

A physician is angry, says we're "doctor bashing". (2.00 / 10)
Rather than link to her comment, here it is:

I don't like the way you all bash doctors.

I tried to tell a patient who had had polio that her shortness of breath, inability to take a deep breath, was due to neuromuscular weakness from past polio.  She had difficulty believing or accepting this.  Though she had a little valvular heart disease, her shortness of breath was out of proportion to the valve problems.

Please don't label all physicians the same.  Also I am an MD, and our local DO medical students don't seem to want to interview patients closely.  I agree with many that patient history is key to diagnosis, not just a bunch of tests.

I ignored it for over an hour, but then I said this:

It does sound that way, doesn't it?

It also sounds like you're not one of the doctors we're talking about. I know lots of fine and gifted physicians and I've written about some of them.

However, this is a blog for the disabled, and we have collectively had some horrific experiences at the hands of your profession. It would be more helpful, I think, if you would address that pressing matter - either here, or among your colleagues.

Our lives depend on it.

Is the medical community really that blind to what some of them are doing? If so, does that make them part of the problem, too?

"Do your little bit of good where you are; it is those little bits of good put together that overwhelm the world." ~ Desmond Tutu


I remember your blog posts working through your own (2.00 / 8)
health challenges and those are evidence that even a trained medical person such as yourself can get caught in a nightmare of missed diagnoses and the failure of medications and treatments.

I don't think your posts are "doctor bashing" although probably some of the comments express a lot of frustration with the western medical model. And, guess what? Sometimes the doctors are wrong!

Words have meaning. Our words will reflect what is in our souls.


[ Parent ]
well, NurseKelly if ever there was an example (2.00 / 5)
of why it would be beneficial to host that series here, the topic of your conversation with the MD says it all.

i vote YEA, enthusiastically.

time...it seems to move so slowly until that day, when it doesn't.


[ Parent ]
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